Lots has happened and I’m kind of torn about how to share it with everyone. Thus the sporadic nature of my blogging lately. If you’re reading solely to follow my journey with kidney disease you might be disappointed. I had an epiphany last week. I’ve always been a believer in positive thinking and that whatever you focus on will happen. It occurred to me that in my focusing on having kidney disease that I was defining myself in the negative light of being sick. That is over. From now on I’ll be focusing on things that I have to be grateful for and things that make me lucky.
With that being said, there are lots of changes lately in my health so here’s a list of bullet point facts that are true:
- My proteinuria got worse over the last three months.
- I got a second opinion and I didn’t like much about what the other doctor said.
- I became a vegetarian a little over a month ago – doctor’s orders.
- I started immuno-suppresant drugs a couple of weeks ago.
Its definitely been a month of adjusting but I’m still positive and I still feel great on a day to day basis which makes me super fortunate. Plus, I didn’t die which completely defines how I view my life these days. You only live once and when you almost die you start to live much more for the moment and appreciate what you have rather than what you don’t or what you wish for.
Vegetarianism as been both harder and easier than I thought it would be. Easier because I don’t miss meat at all. I miss fish a tiny bit but I haven’t felt deprived or unhappy at all. Harder because it takes a whole lot more planning and strategy just to make regular meals happen. When you’ve always cooked, your habits of what you shop for and what you stock in the cupboard are pretty set and without much planning you know how to throw a meal together. When all your go-to habits include meat – and you have kids and a husband who don’t want to be vegetarian – it isn’t as easy. I found after the first week of cooking what I thought sounded good from recipes online and the kids wouldn’t eat any of it that if I include at least Big Sister in the process of recipe searching that there is a higher probability that she will eat it. And if Big Sister will eat it, Little Sister will likely follow. Another thing that is harder than I thought it would be is that if you are both vegetarian AND have to watch your sodium there are lots of recipes you can’t make. The best part of being vegetarian is how much better I feel. I’m still eating eggs and dairy and most of my protein has been from my favorite green veggies like broccoli and spinach, eggs, and my new favorite portabello mushrooms.
After six months of trying the least-invasive treatment options for my disease, it was clear it wasn’t being effective. It worked for a bit but then it didn’t. I’m super lucky in so many ways. First, that I am smart and live in the computer driven information super age. I Googled the SHIT out of treatment options knowing that a change was imminent after my second opinion. Second, that my doctor is willing to let me be a partner in my treatment decisions. The “recommended” treatment for what I have is a chemotherapy drug and a high dosage of steroids. I’m unsure why this is the recommended treatment when it comes with only a fifty percent success rate and gives you a fifty percent chance of getting bladder cancer or leukemia. Perhaps those odds are acceptable for “normal” kidney patients who are in their golden years but when I am only forty one, ‘later’ still has me in the prime of my life with my kids not even fully grown. No thanks. Together, we decided on a different plan that starts with an immunosuppressant drug with no cancer side-effects and no steroids. Plan B is in the wings as well and is a drug that works super well but is expensive so the insurance companies won’t approve it until you’ve tried something else. I’m not even going to start down that road since it’s an entirely different commentary on our healthcare system and will only piss me off if I get started.
So, there you have it. I’m also seeing positive changes in my body now that I’m doing yoga three to four times a week on a regular basis. The scale doesn’t show much difference by I’ve said it before and I’ll say it again: the proof is in the pants and mine are fitting better every week. I’ve got a very strong core – something I can honestly say I have NEVER had in my life before yoga. I’m loving the fall weather with cooler temperatures and am looking forward to starting my “Couch to 5K” training program so I can be a runner again. I miss feeling in cardiovascular shape and it is definitely time to get back to it. It’s been a full year since I’ve done any running and I know it will be like starting over rather than being a runner who took a few weeks off. I’ve lowered my expectations on how easy it is going to be. The best part is that I already know I’ve started from an even worse place than here with my fitness before and did a half marathon within six months. I’ve totally got this!
I’m also busy plotting my next novel. November approaches at breakneck speed after all.
In short, I didn’t die a year ago and now I’m busy living life to the fullest in the only way I know how – overachiever fashion where I do everything. Go big or go home, baby!