Category Archives: Everyday Life

May 20, 2014

Being The Mean Mom

By terraluft

I’ve always been a mean mom. I believe that my kids need to know that there are consequences to their actions and that life isn’t fair. Otherwise, how will they grow to be well-adjusted adults? As a result, I have very well-behaved kids. I’m not always mean, but when the situation calls for it, I have no trouble rising to the occasion. I yell, I spank, I ground, I punish whenever necessary. But this week I’m having to do one of the hardest things I’ve ever had to do under the ‘mean mom’ banner.

Big Sister has been dancing since she was three, competitively since she was five. She’s really good and she really, really loves it. Which is why when she failed her first class, I threatened that if she didn’t get her grades under control she wouldn’t be able to dance anymore. Certainly it would hit home at her core and instill just how important her school work was. Right? That was about this time last year at the end of fifth grade when she got her last report card and her first ‘NI’ grade. Because dance team try-outs happen at the end of the school year, it came with a “last-chance” since we were already contractually obligated for this year’s dance team by then. Unfortunately, she must not have thought I was serious… because she has consistently failed to turn in her homework all year and has failed, literally, at least one class each semester – sometimes more than one. Now I’m faced with the hardest thing I’ve ever had to do: not let her try out for a team next year.

I found out yesterday that even though she’s known for months, she hasn’t told any of her friends on the team because she is so sad. And every time I think about not getting to see her do something she has such passion for and is so good at, I want to cry. But I refuse to give in. (Plus Hubby adamantly won’t let me even if I had a moment of weakness. Not that I’ve had that many of them…) She’s heading into Junior High and, if she couldn’t find the balance between school and extra-curricular activities this year while still in elementary school, she has little chance of doing so when she’s thrust into the insanity of seven different classes and seven different teachers with homework every night. Instead of enrolling her in summer dance classes, I’m enrolling her in a summer reading program to teach her study skills – because god knows she hasn’t listened to anything I’ve tried to teach or instill in her the past couple of years.

Being a parent sure sucks sometimes. I watch my friends struggle with kids who don’t know what they love yet or have decided that video games are all they want to do and I know I’m not alone in these kinds of struggles. But it doesn’t make it any easier. Clearly Big Sister would rather dance than do homework but if she can’t graduate high school or college, I’ve failed in my duties as a parent. It frightens me to think I only have six more short years in which to influence her actions and help her figure out how to be an adult and then, whether either of us are ready or not, she will be an adult.

Here’s hoping this is only a year break that proves to her how important it is to keep up on her homework so she can return to the thing that I always knew would keep her out of trouble when she gets to high school. I can’t fathom if that plan backfires on me. I wish this kid had come with an owner’s manual because I could sure use one!

1 Comment | posted in Everyday Life, Parenting

January 23, 2014

The Perspective and Importance of A Moment

By terraluft

Today I gained the perspective of a forty-two year old. Because I now AM a forty-two year old. It is funny to look back on my late thirties when I started to refuse to acknowledge birthdays and dread that the age number kept getting bigger and what it all meant that I was ‘getting old’. Everything shifted when faced with my own mortality but nothing quite so much as this little thing. When the alternative to getting older is being dead, you start to wonder which is really the worst thing that could happen.

An old friend I haven’t seen in years – but thanks to the wonders of Facebook get to talk to and interact with – said today that my face hadn’t changed since we worked together twenty years ago. It was the nicest thing and proves that aging doesn’t have to be a horrible process. Could it be that happiness and joy are the magical facial cream everyone has been looking for to achieve younger looking skin? Could embracing your life and appreciating everything and everyone in it with open arms and without judgement lead to a younger and glowing countenance? Or was he just flattering me?

I’ve been internalizing a lot these last couple of weeks of yoga training, thinking a lot about being present in every moment and every situation. Things like noticing when Baby Sister gets whiny and I get frustrated and realize I have my focus so fractured between multiple things that I ‘think’ need my attention. The reality is that she is the one thing that needs my attention (usually) the very most in that moment. Thirty seconds of eye contact and direct engaged conversation are usually enough for her to restore harmony in herself and run off to sing and play with her babies leaving me to finish all the other unimportant but pressing things I’ve got going on. What if that’s what everyone needs once in a while? What if life were really that easy? What if it is more about being fully present with someone rather than posing for a selfie over and over until you get it just right?

Have you noticed that there are no longer any bad candid pictures out there? Thanks to the wonders of technology you can immediately see what that “snapshot” is going to look like and decide to accept or re-do until you get it just right. And once you capture it just right, there’s always editing software to remove blemishes and brighten the colors and whatever else you think wasn’t perfect about the authentic moment the lens captured. What kind of a legacy are we leaving for our children when they look back and only get to see what we deemed were the ‘best’ photos of us instead of the ‘real’ photos of us? Are we all taking life way too seriously or taking ourselves out of the real moments to capture the perfect portrayal of the same moment for the benefit of everyone else? What if all that matters is being happy and not all the stuff we surround ourselves with?

These are the things I’m thinking about on the second birthday that I might not have ever had. Ultimately I hope I can be the kind of person that ages gracefully and who people look at and wonder “why is she so happy?” regardless of how many wrinkles are on my face or how high the number next to my age gets. I’ll tell you, forty two never felt so wonderful!

Leave a comment | posted in Everyday Life, Making a difference, Parenting, Random or philosophical thoughts, Society, Yoga

January 4, 2014

2013 In a Nutshell

By terraluft

I’m reading a book called “The Happiness Advantage” with my work book club. I’m not a huge fan of the self-help genre (and for some reason these are the kinds of books that always get picked by the group) so it is taking me months (and hopefully not countless library fines) to finish this one even though it is a fabulous book. What I’m learning is that success, performance at work, and general happiness are all a product of your positive outlook on life and not the other way around. As I am wont to do with every book I read, I’ve been internalizing all the different points the author makes and realize that somehow intuitively I’ve been applying some of these principles in my life already. Mostly because 2013 was by far the most roller-coaster of a year to date in my life.

Here’s a recap of the year:

  • I’m so glad to be alive since I didn’t die from the pulmonary embolism
  • Happy birthday, I’m done taking Coumadin! Let’s celebrate with leafy green vegetables!
  • I finished my first novel – finally!
  • Just kidding, back on Coumadin
  • Wait, why did I just gain thirty pounds in a couple of weeks? 
  • Good news, mammograms don’t hurt and I have medical proof I have a great rack
  • Wow, biopsy of the kidney really hurts but not as much as finding out I have a chronic kidney disease that I will never get rid of.
  • I’m officially more of a yogi than a runner but that’s okay
  • Treatment of kidney disease commences and I am feeling better
  • Started teaching yoga at work since no one else would get the ball rolling
  • Treatment isn’t working, how ’bout chemotherapy? We settled for vegetarianism and immunosuppression after I argued with my doctor for a plan that didn’t come with cancer side effects later.
  • Immunosuppression sucks ass! Time for a pity party from hell
  • Just kidding, I’m over the pity party and ready to BE healthy instead of wallow
  • When the dose is finally right, immunosuppression is actually great since I feel fabulous now!
  • Focus turns back to fitness and surprise – yoga is keeping me from being any worse off than I was before this whole mess.
  • Everyday yoga practice commences – I’m addicted
  • I finished my second novel – in a month!
  • Christmas in California’s warm weather – although the Californians think it is winter we know they are crazy.

The book is full of examples of positive psychology and proof that you are more productive and successful if you first start with a positive outlook rather than saying that once you get {fill in the blank} I’ll be happy. The one that struck me the hardest was talking about how there is a small subset of people who are more successful and happier because they can more successfully pick themselves up off the mat after failures or setbacks. They are the people who define themselves not by what has happened to them but instead by what they can make out of what has happened.

There is no doubt about it that I am a changed person because of the last year. I have always lived life with a touch of spontaneity but now I’m even more apt to jump first and ask questions later. I also cherish my relationships with people – not just those closest to me but everyone I know – differently and more deeply. I know more than most how tenuous life is and how today just might be your last. If you know me in real life and I tell you that I love you, rest assured that I mean it. But that isn’t where I stopped. Back in October when I was deep in my pity party, I could easily have stayed there dwelling on how bad my life was and how I had been forced to turn vegetarian and how I will never be cured and blah blah blah. But instead, I switched my focus to all the things that could have been worse. I’ve never been hospitalized with all this insanity of health issues, I only had a couple of weeks that I couldn’t do yoga to the fullest, and I am able to do whatever I want now in terms of fitness – although running is again something I have to build up to since it has been so long since I did it. I learned last month that the six months I thought I had of immunosuppression treatment is actually a two year gig but I’m rolling with it. It isn’t chemo after all. Sure, I’ll have to be far more diligent with my facial waxing since one of the side effects apparently is increased hair growth but there are worse things, right?

If I’m recapping 2013 in a nutshell, I’d say it gave me a far greater perspective on how I want to live my life. I am still grieving in many ways about the loss of my perfect vitality but I’m also taking steps to get past that loss. I didn’t lose a husband, and I didn’t get a terminal illness (chronic doesn’t directly translate to terminal after all) but I did suffer a loss in the form of seeing the end of my life as I had previously defined it. Instead of wallowing in the grief, I’m redefining my life and living that new life fully. I’m not one to make resolutions with the New Year but I’m far more prone to reflecting this year. As I look ahead to 2014 and all the craziness I’m certain is in store for me and my little family, above all I am happy and hopeful. May your 2014 be the same whoever you are and wherever your circumstances find you. Thanks for reading!

    1 Comment | posted in Everyday Life, Random or philosophical thoughts, Year In Review

    October 28, 2013

    Celebrating non scale victories

    By terraluft

    I’ve talked before about how the number on the scale is just that – a number. And my favorite proof of how my fitness level and body are improving is in how my pants fit. I follow a fitness blogger on Facebook who calls these things ‘non scale victories’ and talks about how important they are to celebrate.

    I feel like my head was removed from my ass a fog has lifted now that my attitude about my health is back to a normal and healthy one. I’ve returned from the brink where I wallowed in crap I can’t change and am focused again on being fit and healthy; measuring my successes rather than just surviving every day. My routine for years has been to track scale weight as well as measurements so I can go back and compare progress and where I was at each different point in my weight loss and fitness journey. Probably no surprise that I haven’t done measurements in well over a year. I struggled with massive water retention and swelling in the beginning of all my kidney issues and didn’t really want to see the stark numbers of how all my efforts had been negated. I could feel it in the pants and knew how bad it was.

    A couple of weeks ago I decided to suck it up and do measurements. If nothing else they could serve as a brand new starting point where I couldn’t go anywhere except up from. Interestingly enough, I’m actually the same size I was right before I ran my last Ragnar over a year and a half ago. Really?! Another reason I love yoga! Without even realizing it I’ve lost all that extra nasty swelling and water weight and kept it off even without running for a year.

    Already feeling pretty good about myself, a few days ago I was enjoying the crispness of a fall afternoon and needed a hoodie. I hadn’t done laundry and there weren’t many options available in the closet. Then I noticed this adorable, maroon, lightweight hoodie hanging there, beckoning me. I’d forgotten all about this beauty. I bought it to commemorate my last Ragnar – me and the rest of the thousands since they were out of my size. At the time I was determined not to need the bigger size ever again so I bought the smaller size and told myself it would be great motivation. Because I had so recently been surprised, I pulled it out on a whim and put it on.

    Holy shit, it fits!!!

    I danced around in my closet jumping in joy and excitement for a good minute – then looked in the mirror to survey just how well it fit. That little bitchy voice in the back of my head was saying ‘just because you can zip it up doesn’t mean it is worthy of leaving this closet’. But it looked great and I wore that thing for two days loving every minute of knowing it was a victory just to feel confident enough to leave the closet.

    I’ve decided these non scale victories are even sweeter than the number on the scale getting smaller. After all, no one but me gets to know or see that number but everyone can see how cute I look in my hoodie! Here’s to more victories in the near future. And if you aren’t looking for ways to celebrate progress, start noticing. It is far easier to stay motivated to do the hard work of being healthy when you are seeing positive results no matter how small.

    Leave a comment | posted in Back to Fit, Everyday Life, Healthy Lifestyle, Running, Yoga

    October 14, 2013

    Today in other news

    By terraluft

    I just had the best weekend! I’m not sure if it is a self-fulfilling prophecy I’m living through or just a random coincidence but I’m feeling so great. Like I-almost-forgot-how-normal-life-feels great. Being present in every moment is a big theme for me now both because my brush with death put a different value on each moment there is and because there is so much about being present in the moment when practicing yoga. When a pose gets hard, you focus on just your breathing and let everything go while your muscles scream and that little voice in your head tells you it is time to be done with this pose thank you very much. Because of my awareness I find it easy to see trends within my own experience especially when they start to shift.

    My amazing weekend started Friday night. I’m not sure if it was partly due to the large quantities of coffee I consumed Friday or just how good I felt but we watched two movies late in the evening and I only fell asleep halfway through the last one because it sucked and it was after one in the morning. I had to get up early for a blood draw Saturday so why force it for a lame movie?

    Saturday I had some alone time while Hubby took the girls on a little Daddy-Daughter adventure and I filled it with shopping for groceries which morphed into deep cleaning my refrigerator before I could put things away. This was one of those chores that easily has fallen for the last year under the category of ‘beyond the daily necessity’ and therefore largely and very effectively ignored. As a result, I had all these random things that had accumulated on the rear half of most of the shelves with no room for the basics that come and go on a weekly rotation. How many open and half-used taco sauce bottles or jars of jam does one person need? And why can’t they sell plum sauce in single-use size jars since that’s the only size I am ever going to need? It felt so good to do something I know I wouldn’t have had the energy for just a week ago and still feel like I could keep going.

    All of these little things were nice but still kind of UN-noteworthy until Sunday morning rolled around. Even though I’d worked hard all day and was up late Saturday night to pick Big Sister up from a late birthday party, I woke up early. The first thought in my head was about going for a run walk and wondering if it was raining or if I had time to squeeze it in with everything planned for the day. I haven’t awoken with thoughts about running in any form since probably January! Unfortunately it was pouring rain so I decided coffee was a better choice. But the fact that the thought was there was noteworthy.

    Sunday’s to-do list included two things and two things only: 1) Clean the house; and 2) Big Sister’s Birthday Party. What this translates to is do all the dishes not just the ones that fit into the dishwasher, clear off all the crap that accumulates on the kitchen table over the course of the days and weeks of comings and goings and vacuum the floors if I have the energy so that my family and friends don’t know how truly slacker I am when it comes to housework lately. What actually transpired was iconic. I ended up deep cleaning the kitchen including the dreaded top of the refrigerator and moving, cleaning and de-cluttering half of the place. Things that hadn’t been touched let alone cleaned in months were discarded and others found new homes since they are no longer used regularly. But I didn’t stop there. I had so much energy and felt like I was still on such a roll that I not only vacuumed, I MOPPED the floors. And not just the high traffic areas! I moved all the furniture and rugs and everything out. Something I haven’t done full on in more months than I care to admit in public. When the party started I looked back on the fact that I had gotten up early, hadn’t sat down for more than twenty minutes for that one cup of coffee first thing and still felt like hanging out and chatting with all our family and friends well into the night.

    It wasn’t just a fluke either… Today, I got up for my six AM yoga class like normal and then decided to do some upper body work with dumb bells while I was multi-tasking on a conference call this afternoon. That’s two work-outs today before working hours were done. I haven’t felt ambitious or energetic enough for that since before the Las Vegas Ragnar  in 2011 when I was running and lifting weights six days a week!

    One could argue that none of these things by themselves are earth-shattering or even truly significant. But for me they add up to proof I’m feeling better and headed back to the land of living, fit people. What kind of things do you do everyday that give you the same sense of being alive and well or do you even notice these kinds of things? If you don’t find yourself present in every moment of your day, you really should try it. You’d be amazed at what you can see when you’re looking…

    Leave a comment | posted in Back to Fit, Everyday Life, Healthy Lifestyle, Kidney Disease, Running, Yoga

    October 10, 2013

    Being Healthy

    By terraluft

    First, an update on my pity party pit stop. It is over… so don’t worry that I’m spiraling slowly downward into the depths of despair which my melodramatic last post might have indicated. The lesson I’m choosing to take away from the past two weeks of roller coaster is that I should never never never blog when I start a new drug and am still trying to adjust and find the correct dose. I’m happy to report that this new medication is actually not that bad once my body got adjusted to it and it is already working since my protein loss is down again. We all know I’m not a patient woman – as if anyone needed more proof of it.

    My joint pain is basically gone. Yippee! (I even found myself running up the stairs today!)
    My headaches are a thing of the past. *knock on wood*
    My stomach isn’t upset anymore. Hurray!
    And because of all of the above, I’m in super spirits. But that is not enough…

    I had a very powerful conversation the other night that got me thinking – ironically the same night I posted about my pity party. For almost a year I’ve focused on entirely the wrong things. I say “at least I didn’t die” as if my life is a bobbie prize to all of my experiences of late. I have been so hung up on all the things that have changed within my current reality instead of embracing all the amazing things I now have the opportunity to experience and accomplish. So I can’t run anymore, who cares! Keep reading, you’ll understand what I mean.

    First reality check: I love yoga probably more than I ever loved running and if I were still running I wouldn’t have the yoga practice (or the friends) that I have because I would still be trying to do both. Do I want to add some cardio back into my fitness routine? Sure. But will my life be incomplete if I’m not a full-blown runner anymore? No! Sure I have to start all over with walking before running but I already know exactly how to do that. Bonus!

    Second reality check: It was pointed out to me by a niece who I rarely see but interact with on Facebook that all my photos of the last year show me far more glowing and happy than I was before all my current health experiences started. Despite how I feel day to day, my life IS better because I’m focusing on the people and things that matter the most to me rather than doing all the things that I “should” be doing instead. I gained a very healthy way of prioritizing things in my life and embracing spontaneity because I did almost die, I just haven’t been thinking about things in the same way as I’ve been living. Instead I’ve been all up in my head dwelling on all the stuff I want to change which translates into exactly what I’m talking about here. Thoughts becoming actions and actions becoming habits as they say.

    Nothing hit me in the face harder than when I ran into an old friend yesterday who I haven’t seen or had contact with for over a year. We hugged and she asked me how I’ve been. The first words out of my mouth were: “I’ve been better. I’ve got kidney disease.” Seriously, Terra? That’s how you want to sum up your life and boil your existence down into one sentence? It kind of hit me like a ton of bricks when I walked away and thought about how saying that changed the entire exchange. You can’t tell by looking at me that I have any issues going on. I have yet to miss work other than for doctor visits and the like. I’ve never been hospitalized except for one weekend afternoon I spent in the ER. And I could have said ‘I’m great!’ and still be telling the truth of my life right now. Why didn’t I? Words are powerful as they say. Especially true when they are the words that little voice is constantly saying inside your own head undermining everything.

    So, with my body healing and marching down the road toward remission in the next two months, I’m going to get back to BE-ing. Being present in every moment and every thought rather than dwelling on the past or how things could have been different for me. The only thing constant in the Universe is Change after all. I’ve always lived with no regrets so why start now regretting things way beyond my control? Being healthy by living everyday as a fit person who does yoga all the time and who feels amazing because there are no more excuses to be the vegetarian I always wanted to be yet never had the courage to commit to. Life is a journey full of lessons to learn and experiences to have. No one gets to pick all the things that come along on their path. It is what we make of those experiences and the meaning we attach to everything that defines how life goes for us.

    Another friend shared a quote on Facebook this morning: “People wait all week for Friday; all year for summer; all life for happiness.” I don’t know who said it but I couldn’t agree more. I’ve been waiting all year for health instead of celebrating how healthy I already am. I declare NO MORE and am living in the moment committed to loving my life to the fullest, being healthy and happy above all.

    Leave a comment | posted in Back to Fit, Everyday Life, Healthy Lifestyle, Kidney Disease, Running, Yoga

    September 29, 2013

    Vegetarianism and immunosuppression – oh my!

    By terraluft

    Lots has happened and I’m kind of torn about how to share it with everyone. Thus the sporadic nature of my blogging lately. If you’re reading solely to follow my journey with kidney disease you might be disappointed. I had an epiphany last week. I’ve always been a believer in positive thinking and that whatever you focus on will happen. It occurred to me that in my focusing on having kidney disease that I was defining myself in the negative light of being sick. That is over. From now on I’ll be focusing on things that I have to be grateful for and things that make me lucky.

    With that being said, there are lots of changes lately in my health so here’s a list of bullet point facts that are true:

    1. My proteinuria got worse over the last three months.
    2. I got a second opinion and I didn’t like much about what the other doctor said.
    3. I became a vegetarian a little over a month ago – doctor’s orders.
    4. I started immuno-suppresant drugs a couple of weeks ago.

    Its definitely been a month of adjusting but I’m still positive and I still feel great on a day to day basis which makes me super fortunate. Plus, I didn’t die which completely defines how I view my life these days. You only live once and when you almost die you start to live much more for the moment and appreciate what you have rather than what you don’t or what you wish for.

    Vegetarianism as been both harder and easier than I thought it would be. Easier because I don’t miss meat at all. I miss fish a tiny bit but I haven’t felt deprived or unhappy at all. Harder because it takes a whole lot more planning and strategy just to make regular meals happen. When you’ve always cooked, your habits of what you shop for and what you stock in the cupboard are pretty set and without much planning you know how to throw a meal together. When all your go-to habits include meat – and you have kids and a husband who don’t want to be vegetarian – it isn’t as easy. I found after the first week of cooking what I thought sounded good from recipes online and the kids wouldn’t eat any of it that if I include at least Big Sister in the process of recipe searching that there is a higher probability that she will eat it. And if Big Sister will eat it, Little Sister will likely follow. Another thing that is harder than I thought it would be is that if you are both vegetarian AND have to watch your sodium there are lots of recipes you can’t make. The best part of being vegetarian is how much better I feel. I’m still eating eggs and dairy and most of my protein has been from my favorite green veggies like broccoli and spinach, eggs, and my new favorite portabello mushrooms.

    After six months of trying the least-invasive treatment options for my disease, it was clear it wasn’t being effective. It worked for a bit but then it didn’t. I’m super lucky in so many ways. First, that I am smart and live in the computer driven information super age. I Googled the SHIT out of treatment options knowing that a change was imminent after my second opinion. Second, that my doctor is willing to let me be a partner in my treatment decisions. The “recommended” treatment for what I have is a chemotherapy drug and a high dosage of steroids. I’m unsure why this is the recommended treatment when it comes with only a fifty percent success rate and gives you a fifty percent chance of getting bladder cancer or leukemia. Perhaps those odds are acceptable for “normal” kidney patients who are in their golden years but when I am only forty one, ‘later’ still has me in the prime of my life with my kids not even fully grown. No thanks. Together, we decided on a different plan that starts with an immunosuppressant drug with no cancer side-effects and no steroids. Plan B is in the wings as well and is a drug that works super well but is expensive so the insurance companies won’t approve it until you’ve tried something else. I’m not even going to start down that road since it’s an entirely different commentary on our healthcare system and will only piss me off if I get started.

    So, there you have it. I’m also seeing positive changes in my body now that I’m doing yoga three to four times a week on a regular basis. The scale doesn’t show much difference by I’ve said it before and I’ll say it again: the proof is in the pants and mine are fitting better every week. I’ve got a very strong core – something I can honestly say I have NEVER had in my life before yoga. I’m loving the fall weather with cooler temperatures and am looking forward to starting my “Couch to 5K” training program so I can be a runner again. I miss feeling in cardiovascular shape and it is definitely time to get back to it. It’s been a full year since I’ve done any running and I know it will be like starting over rather than being a runner who took a few weeks off. I’ve lowered my expectations on how easy it is going to be. The best part is that I already know I’ve started from an even worse place than here with my fitness before and did a half marathon within six months. I’ve totally got this!

    I’m also busy plotting my next novel. November approaches at breakneck speed after all.

    In short, I didn’t die a year ago and now I’m busy living life to the fullest in the only way I know how – overachiever fashion where I do everything. Go big or go home, baby!

    Leave a comment | posted in Back to Fit, Everyday Life, Healthy Lifestyle, Kidney Disease, Overachiever, Writing, Yoga

    July 8, 2013

    My own little challenge

    By terraluft

    I’ve been looking back on my blog entries and feeling like a broken record. Could I talk about anything besides my health the last few months? Unfortunately I haven’t been writing, or running, or over achieving in any way besides staying on top of my laundry and dishes while dealing with my new crazy reality – even at work. So I decided to challenge myself to find things to blog about that had nothing to do with my health. Instead of coming up with lots of fun and entertaining things to talk about, I didn’t blog for weeks. *Sigh*

    So, here’s some random thoughts and things I’m grappling with this week.

    1. My lack of motivation to run again. I need a fairy godmother of running to appear and smack me upside the head with her magic wand so I can get my running mojo back. It is apparently really hard to get back into a daily workout regiment mindset after almost a year has gone by. I ran a couple of weeks ago and my calves were super crampy and my lungs have lost a few steps which had me kind of dejected. It’s one thing to assume you are basically starting from ground zero and quite another to actually see proof that you’ve lost basically everything you once had and fought so hard to develop. I’ve committed to a relay race in late August, a 5K in September and a half marathon in October with my running buddy but have yet to start whole-heartedly training. What the hell is my problem? I think part of it is emotional since my bought and paid for half marathon that was supposed to be my triumphant return to running after my pulmonary embolism came and went without me there. I cried that morning which is kind of unlike me and maybe I haven’t completely gotten over the loss. There’s nothing I hate more than admitting I can’t do something and it really got to me. Time to grab the boot straps and get my shit in gear before it’s too late.

    2. Yoga. On the flip side, my yoga practice has morphed into amazing levels and makes me so happy. I was on call last night, didn’t get to bed until almost one in the morning and got paged at two, three and four (almost on the hour) but still got up in time to make my six AM class. It’s been seven months of regular practice and I can feel measurable results both in how my body feels and the things I can do. I have a very solid core that I am aware of all day long for the first time in my life. And I can do a back bend, a hand stand (against the wall, but still) and all sorts of poses I never thought possible. The best part is that I now am confident enough to do my own practice instead of having to have someone lead and tell me what to do. It was amazing to wake up in the morning of our book club overnight retreat and bust out a half hour session of yoga by the pool with two of my fellow yogini.

    3. Book club pressure. It’s my turn to pick the book for my book club. The last six months flew past and where I usually voraciously read a grip of books in an attempt to find the perfect one, I find myself under the gun with not enough time to pick the way I want. I read forty five books last year and have already read almost half that many this year but when I put together my short list yesterday it was a struggle to find even nine that are remotely worthy of consideration. Of those nine, I’ve narrowed it down to only three that I feel would yield a great discussion. One I eliminated as too long to read in a month because even I balk at a mammoth of eight hundred pages when there’s a deadline to finish. Two were angst ridden young adult novels with little to discuss when I tried to make a list of topics for the group. A couple were science fiction and had great premise but again, not a lot to discuss. One was beautifully written but ultimately just a short story about a very depressing subject with nothing much to discuss beyond the big reveal at the end. What I’m left with is a beach-read romance with a twist that I fear is ultimately filled with cliche that people won’t find enjoyable enough to discuss, a post-apocalypse tale that overall is grim but gives a ton of discussion, and a Pulitzer prize winner that I fear is far too controversial for my group as a whole. This last one I have wanted to pick for several years and still finds its way onto my short list. Going into this year I just KNEW it was going to be the year. And then we’ve read several very controversial books that pushed the envelope of the group already and do I really want to pile on yet another book that people will either hate dragging themselves through or will simply choose not to read because they really want something light and happy? Oh the pressure of picking the book for discussion! No one is arguing that I might put a tad too much thought and analysis into picking but that is kind of the norm for my amazing book club.

    Wow, it can be done! Here’s to much more to talk about in the coming months other than my health.

    Leave a comment | posted in Books, Everyday Life, Running, Yoga

    June 20, 2013

    Light at the end of the tunnel

    By terraluft

    It’s been a month since I started treatment for my new reality. I’ve got a frequent flyer card at the hospital. Having standing orders for lab work every two weeks is all it took. I’ve figured out my daily medication dance – some I take in the morning, some I take on an empty stomach, some I have to take with food, some only at night. It’s kind of crazy when I step back and look at it but I’ve gotten it down to almost second nature.

    Last week I met with my kidney specialist to see how I’m responding to her treatment plan and figure out next steps. It was amazing to see what a difference my labs show after such a short amount of time. Kidneys still functioning perfectly, my proteinuria is down to 3 from 18 a month ago. My risk factor for long term decline is down to only a moderate chance. She also said that I’m no longer in danger of developing new blood clots and if I keep this up I should be all better in a few months and can taper off my meds. Best part: no more fluid restrictions and I can *try* running again and see how it goes. 

    There was a little bump at the end of the week when I was so light headed and feeling sick at work that I went to the nurse and had my blood pressure checked. It was SUPER low so I went home and called the doctor. Apparently it was hot enough outside added to my higher dose of diuretic I’ve been taking that I was dehydrated. Drank some Gatorade and lowered my diuretic dose and I’m all better again.  

    This week I met with my regular primary care doctor since it has been three months since we made our deal about going back on Coumadin – three months to the day as it turns out although I didn’t do that on purpose. It just happened to be the day I ran out of my medication and I didn’t want to refill that prescription again. He agrees that I’ve made enough progress that I can stop taking it. Hopefully forever this time! I’ve been celebrating with a huge salad every chance I’ve had because I can eat whatever greens I want to again. 

    It’s no secret I’m into natural and alternative medicine and I wonder how much the essential oils I’ve added to my daily regiment have aided in this quick turn around from diagnosis to now. I look at it that they are all natural and they can’t hurt so why not add it to my mainstream medicine regiment. If it helps, I’ve gained speed toward good health; and if it doesn’t it won’t hurt anything by trying. After all the research and how much better I feel when I use them, I believe it is helping so I’m sticking with it.

    Here’s to summer and improved health. Although I could do without the heat outside, I’m certainly not complaining about anything in my life right now.

    Leave a comment | posted in Alternative Medicine, Essential Oils, Everyday Life, Kidney Disease

    May 19, 2013

    Did I say rock bottom? Just kidding!!

    By terraluft

    Remember when I said I’d hit rock bottom and then in jest said something about how I hoped it was the bottom because that would be a sick joke if it wasn’t? Well, I’ve learned the truth of ‘never say never’ and to never assume you’ve seen the worst it could be… because man did it get worse last week. Here’s what happened – in chronological order because I’m OCD like that of course.

    First a confession… I already knew what I had on my last blog post – probably why I was already at the anger stage. My insurance company has an online medical record and if you are smart like me you know that those tests your doctor orders are usually online long before you meet with that doctor to see what they showed. So, Tuesday I saw the pathology report with my diagnosis: Membranous Nephropathy. And of course I googled the shit out of it.

    Bottom line: there is no cure. The membranes in my kidneys are enlarged and therefor don’t work as well so I lose all my protein in my urine. But two thirds of the people diagnosed end up in remission so my chances are good. I met with my specialist on Thursday still a little sore and weak from the biopsy but having spent the better part of the week on my couch helped. She started me on several new meds and ordered additional tests including standing orders for them to be repeated every two weeks to monitor how well the new meds are working. So much for seeing the doctor and the lab less often, eh? Both meds are designed to treat the symptom of losing protein so I don’t also end up with my kidney function declining. I left the doctor with the knowledge that I really had the answers I’ve been searching for (ROOT CAUSE!) and a plan of attack. I felt hopeful and happy.

    And then Friday afternoon I started feeling crappy. At first I chalked it up to having taken a higher dose of my diuretic which my doc said I could try to see if the water retention would go down faster (I’m not a patient woman, remember!). I also read on the information sheet of one of the new meds that I had started that it was common to feel run down and yucky when first taking the med. (Am I the only person who actually reads that whole paper they send you home with from the pharmacy?) I logged off work for a nap to try and feel better about two o’clock that afternoon. My kidneys ached and I couldn’t get comfortable and generally felt awful. Got very little sleep on Friday night and woke up Saturday morning no better.

    Saturday morning an hour before I was supposed to leave for Big Sister’s dance competition where I was looking at nine hours on the high school bleachers, I couldn’t take a breath without excruciating pain in the abdomen which radiated up my back, through my chest and out my shoulder. The deeper the breath the worse the pain. I was faced with the hardest thing ever as an overachiever – the knowledge that no matter how much I wanted to power through whatever I had in my way I wasn’t going to be able to do it all. I still hate to think about it! Here’s something else you might not know about me: I hate asking for help. Of course it goes along with my overachiever tendencies because if I have to ask for help then I’ve made an irrefutable statement that I cannot do everything. So not okay with me and after all of these years of doing it all I am very, very set in my ways.

    Luckily I have amazing friends who are also close neighbors. I called Mommy of Big Sister’s BFF who is also one of my BFF’s and a fellow dance mom since her older daughter is also on our competition team. She is like a force to be reckoned with in a crisis. As in I think that FEMA would be a great place for her in the event of a major disaster. Within minutes she had called Mommy of Baby Sister’s BFF next door who came and took her away – in her pajamas – to spend the day with them. And she rushed over to grab Big Sister and all her gear for the competition whisking her away to do hair and makeup and be her surrogate mamma for the entire 9 house so Hubby could take me to the Emergency Room at our nearest hospital.

    Five hours I spent in the ER. Five. Hours.

    Basically I was one of the few lucky people who’s kidney bleeds after the biopsy. The blood pooled under my diaphragm and created irritation both on the kidney and the diaphragm so every breath resulted in intense pain. Of course they ran a total blood work up to make sure there wasn’t anything else going on plus a urinalysis which confirmed there was blood in my urine and therefor my kidney. Then my blood pressure was super duper low and wouldn’t stablize so I had to stay a while longer – turns out I was a bit dehydrated. Gee, isn’t that what one would expect when I’m on a powerful diuretic and have liquid restrictions? Sheesh. I got some great narcotics to knock me out and curb the pain while my body reabsorbed the blood my kidney leaked out because there was nothing else they could do. Most of Mother’s Day weekend was a narcotic blur full of pain and suffering. Plus the emotional pain of having missed watching my daughter dance for the first time ever. Having to let go and accept that it doesn’t make me a bad parent was difficult but her surrogate mom for the day brought me video and score sheets so in the end I didn’t have to feel like I missed a thing.

    This week has been much better. *knock on wood* My pain was gone by Tuesday and the novelty of taking a deep breath has returned. Each day on my treatment has me feeling better. I’m also using essential oils to treat the nausea side-effect of whichever med it is that causes that and to generally improve my mood. Hubby calls them my magic oils which might be accurate since they make me happy. I say “what does it hurt”, right? I even spent twelve hours at Big Sister’s dance competition yesterday like I hadn’t been in the hospital a week ago. Go me!

    I guess the visit to the hospital showed that overall I’ve been super lucky in this whole journey. I’ve never been hospitalized even when both my lungs were half blocked with blood clots. I can still work and play and care for my children even if my house is less than pristine most days because I don’t have the energy for housecleaning on top of it all. And if I had to chose my kidney disease, I got the one I would have picked. The treatment is relatively benign, it is a slowly progressing disease where it would be decades before I need dialysis/transplant and my chances are higher of going into remission than progressively getting worse.

    So yeah, I have kidney disease. But I’ll be fine because I can’t change it and I’m not going to sit around and wallow about why it happened or play the victim about why it happened to me. In truth, this specific thing happens to two in every ten thousand people which makes me just one of thousands going through the same thing right now. And I’m a master overachiever so I’ve got this in the bag. Even if it means going to bed a little earlier so I have the energy to kick ass as needed the next day…

    Leave a comment | posted in Events, Everyday Life, Kidney Disease, Overachiever

    May 9, 2013

    Biopsy week and a glance down memory lane

    By terraluft

    Two years ago I was preparing for my first ever Ragnar race that was a month away. I ran two of those bad boys that year and logged well over five hundred miles on my running shoes. I was the healthiest I’ve ever been in my entire life after deciding in 2008 that I was done being unhealthy and unhappy and transformed myself into a runner. I think that’s why this whole ordeal has been so hard on me. I worked my ass off to be healthy and live a long life with my kids and my husband to end up two years later with kidney disease? That is bullshit. Fucking bullshit.

    Monday I had my kidney biopsy. Afterwards, they handed me my instructions to go home with which I was awake enough to read through. To my surprise item number four read: “You may return to work in one week.” What the hell? No one told me this shit was going to take me away from work for an entire week! Don’t you think that is something you kind of need to tell people ahead of time so THEY CAN PREPARE? I was so pissed and I’m sure I scared the timid little nurse with my thunderous rage as she scurried out the door to get someone to talk to me. The compromise is working at home all week from my couch but only because I have one seriously amazing boss. Three days out from the procedure, I totally know why I needed this week off. I’m a slow-moving hot mess who is out of breath and has zero stamina. Is it time for my nap yet?

    Today is what I have dubbed “Answer Day”. I have an appointment with my specialist this afternoon to go over whatever it is that the biopsy showed and where we go from here. My one and only question for her will be: how do I get back to where I was two years ago where I can run every day and have energy to keep up with my kids? Because that’s all I’m really interested in. This shit – whether it is curable or not – is not going to take the joy from my life. I may not get to choose whether I have kidney disease but I get to choose how I live with it! Wish me luck and workable news…

    1 Comment | posted in Everyday Life, Kidney Disease

    May 1, 2013

    Clawing up from rock bottom

    By terraluft

    It can be said I’ve been through the wringer the last few months. No argument here. But nothing about the past five months had prepared me for what I faced the past few weeks. I am certain I hit rock bottom last week. Or at least I hope it was the very rock bottom. It’s possible the Universe has yet another joke to pull, but I hope not!

    I put on another ten pounds of water weight the week between my last visit with my doctor and meeting with my nephrologist (kidney specialist) last Monday. TEN pounds. In one week! Literally nothing but my yoga pants fit me and my face was so swollen it was impeding my vision. I was a water balloon stretched to the limits and could barely get through the minimal motions of yoga the morning of my appointment. My yoga instructor who is also a good friend must have been inspired because that morning she said “if you can sit and breath, you are doing yoga” which my poor psyche took great comfort in. I couldn’t sleep because just having my legs touch each other was painful, all I wanted to do was sit on the couch – and eat of course since I’m an emotional eater – and I can say I now know what depression really feels like.

    I walked into the nephrologists office hoping for a miracle and that somehow I would have relief that day. I went early to do paperwork, watched all the elderly patients walking in and out and wondered how I fit into this scene at all. When it was my turn I stepped on the scale, saw the HUGE new number, and then sat crying in the exam room waiting to meet my new doctor knowing it was probably not going to get fixed in a day with some magical new medication she could prescribe. The office was plastered with posters about advanced and chronic kidney diseases and all this treatment info. I’m certain it was meant to be helpful and informative but instead it was overwhelming.

    When the doctor came in she asked a lot of questions and looked at all the labs and imaging I’ve had done but didn’t know what was causing this thing with my kidneys. It was ironic how many of the questions about when symptoms had started could only be answered by framing them in terms of my fitness. For example, I only noticed the swelling in my legs when I could no longer sit in child’s pose in yoga about a month ago. And my shortness of breath went away for a bit because I could run in January but soon came back and I haven’t been able to run since February. At one point she looked at me and said “so, you are healthy”. Um, yeah! Which is why this is so hard to deal with. She took a ton of blood for more testing and ordered a kidney biopsy so we will have some answers and know where to go for treatment. Best of all, she prescribed a new medication that I could start taking immediately to help with the water retention. And, she believes that whatever has caused my nephrotic syndrome is the cause of my blood clots in my lungs which means I’ve been dealing with this since sometime last fall and possibly even longer.

    The relief of having at least one question answered was so great. Of course it doesn’t address the question of what’s going on with my kidneys but baby steps are okay for me here. The nephrotic syndrome, which causes the water retention, the blood clot and even the thyroid issues are all still symptoms of something else happening which is yet to be determined. Kind of like going deeper into the rabbit hole. The big bad things I used to fear – diabetes and heart disease – have been ruled out completely which makes me happy in some tiny way.

    Speaking of relief… that new medication? It turns out she COULD give me a magical cure in the form of a pill that day! After one dose, I had dropped FIVE pounds the next morning. I have to monitor my blood pressure and my weight until I see her again because it might be too high or too low of a dose. So I know that I’m down almost twenty pounds of water weight just in the last week. I feel so much better it makes it seem like I’ve been cured. Of course there’s still the kidney biopsy looming next week – a four hour procedure under general anesthesia – but that will give us definitive answers so I’m looking at it as a positive thing. And trying not to freak out about the procedure itself of course.

    I have even more restrictions on what I can eat – and drink now, too! No salty foods, and no adding salt at the table to anything. And, I can only drink a total of two quarts of fluids each day. That includes all fluids. Coffee, breakfast shake, water, everything! Both of these have to do with the water retention so I’m more than happy to oblige although I am constantly thirsty now and would KILL to be able to hydrate normally. There’s some more irony for me…. I’m a runner who can’t run OR hydrate anymore. I’ll be a hot mess and will probably have to start all over when I can run again. But, at least I didn’t die, right?

    At one point in the deepest darkest week of hell I got drunk on a Tuesday night at a neighbor’s house. Not my finest hour but I was so beyond depressed that I didn’t know how else to cope besides getting to where I didn’t care for an hour or two. Of course I don’t have that luxury anymore because I’d have to drink zero all day just to be able to drink enough to get a buzz but it was sure fun to escape while it lasted. At one point I woke up and had one of those moments that you read about – for a moment I was happy and everything was okay and then it hit me like a ton of bricks that I have kidney disease and my world shifted. I always thought it was a metaphor but that’s exactly how it feels.

    Luckily that deepest darkest week of hell is behind me and thanks to my better living through pharmaceuticals I feel like I’m slowly getting back to normal… again. Here’s hoping that the biopsy next week does yield answers so a treatment plan can begin and get me really back to normal soon. I miss running so much that I dream about it occasionally. And I haven’t given up hopes of being able to finish the half marathon I’m registered for in June, although I know it will be a lot of walking in between some running. Hubby and I looked across the kitchen at each other last night as we were both getting our maintenance medications out of our respective pill bottles and ruefully laughed. Both of us swore years ago that we were going to do everything possible to stay healthy so we didn’t end up being one of “those people” with chronic conditions that required constant medication. Sometimes the Universe has a really sick sense of humor…

    Leave a comment | posted in Events, Everyday Life

    April 15, 2013

    When ‘Fine’ no longer applies

    By terraluft

    I’ve reached a place psychologically where I can honestly say I have never been before. When people ask the question ‘How are you?’ I can no longer respond with ‘Fine’. Because I am not fine. No sir, not even close to fine. I’ve gone so far away from fine that I don’t even know how to get back there from here. I hope it is just over the horizon and somehow within my grasp again soon but I’m not sure of that.

    Okay, enough of the melodramatics…

    My health has taken yet another turn. I thought a pulmonary embolism was the worst thing that could happen – aside from coronary artery disease. But, I was wrong. There I was last week, happily and without complaint following my coumadin regiment and getting my blood tested weekly to monitor my clotting levels, not eating my greens (or at least not cheating too much), not feeling like running yet but expecting it any day now. And I noticed something new. Well, okay, what I mean is that I could no longer ignore something new as insignificant. My legs from the knee down are swollen. And by swollen, think pitting edema (Google it, I dare you). They’ve been swelling since before Easter now that I think back to the tantrum I had that morning when my cute strappy-sandals from last summer wouldn’t go on my swollen feet and I was feeling completely fat and bloated – but I chose to ignore it hoping it would go away. Some things never change I guess.

    I mentioned it to the nurse while I was in getting my weekly blood draw and next thing you know I’m having more blood work and urinalysis. Guess what – there IS something else wrong. This time with my kidneys and my thyroid. I feel like I hit the big four-oh and immediately started falling apart. The thyroid thing is apparently unrelated (and hereditary, thanks Mom) but could contribute to why I have had very little energy and don’t feel like the coumadin has kicked in as quickly this time around to getting me back on the treadmill/road. The kidney thing definitely is the reason I’m swelling up and retaining so much water. Thank goodness the female part of my psyche that keeps yelling FAT GIRL every time my pants feel tight the last couple of weeks can shut the hell up now. The fifteen pounds of extra weight I’ve put on the last three weeks is NOT because I’m unable to eat salad and veggies and can’t breathe well enough to run yet. So there! *sticks tongue out*

    But now I’m back to having more questions than there are answers. Plus more poking and prodding and testing trying to figure out exactly what IS going on with me. Can you say “high deductible met by April”? Say it with me…

    Needless to say, I cling desperately to my weekly yoga sessions to reset my psyche. That overworked psyche that is trying her hardest to keep her chin up. The alternative is wallowing in self pity and self-induced panic about what the future holds which I’ve caught myself doing – very unlike me. I don’t feel like myself, I don’t look like myself, and some days I have little desire to be myself in this current unhealthy stage of the game. I’ve grown weary of all this crap and would kill for feeling good with all my energy back. It is a daily struggle to lift myself up and keep myself going. And my family is imploding because the force at the center that keeps it all a smoothly oiled machine is falling apart. But, it is what it is and at least I didn’t die. (That’s my mantra lately.) While it sucks right now and I’m not fine, I have high hopes that I will be soon.

    Camp NaNoWriMo has turned into more shenanigans than writing but I’m still brainstorming and plot outlining whenever the inspiration hits me. Its like going to summer camp and doing the fun stuff like swimming and hanging out by the fire but skipping the hard stuff like cooking and cleaning up. It’s enjoyable but it doesn’t get everyone fed regularly. My writing can wait while I focus on getting healthy again. And that half marathon I’ve already paid for? Yeah, who knows if I can even walk 13 miles by June let alone run but I’m still hoping I can participate. We shall see…

    If I’m a bit more sporadic on the blog, now you know why. In many ways “I’ve been better” has become my default where everything used to be “fine”. Here’s to there being nothing significantly or long-term wrong with me and to a quick recovery back to the land of the healthy! *fingers crossed*

    2 Comments | posted in Events, Everyday Life